For Patients

For Patients

Patient Resources

Need information about your disease? Are you looking for others who struggle with the same condition? Check out the following resources.

Patient Resources

  • Medicare

    Medicare is the US government’s health insurance program for people over 65. Some people under the age of 65 with certain disabilities may be able to get coverage through Medicare. There are two program options: Medicare Prescription Drug Plan (Part D) or Medicare Advantage (Part C) that can help pay for prescription drugs. You will need to enroll during certain times of the year.

  • Medicare Extra Help

    If you are covered under Medicare and meet certain income guidelines, you may be eligible for the Social Security Administration’s Extra Help program. This program will help with the cost of monthly medical fees and medicines.

  • Veterans Affairs

    With veteran’s benefits, you may be able to get your medications for free or for just a small copayment. Copayment (copay) is the amount an insured person will pay for a healthcare service or medicine at the point of care.

  • Medicaid

    Medicaid is a health insurance program sponsored by states. It is for low income US residents of any age. Your state may have a different name for Medicaid. Each state has different rules that must be followed.

  • Other State Programs

    Many states have prescription drug programs that are not part of Medicaid. These programs may be able to help you afford your medicine. Sometimes, a state program is linked to Medicare’s Part D drug plan.

The Following site includes program descriptions and contact information about federal and state assistance
Healthfinder is a Federal website for consumers, developed by the U.S. Department of Health and Human Services together with other Federal agencies. It is a key resource for finding government and nonprofit health and human services information on the
Hill-Burton Free and Reduced Cost Health Care
In 1946, Congress passed a law that gave hospitals, nursing homes and other health facilities grants and loans for construction end modernization. In return, they agreed to provide a reasonable volume of services to persons unable to pay end to make their services available to all persons residing in the facility’s area. The pogrom stopped providing funds in 1997, but about 300 healthcare facilities nationwide are still obligated to provide free or reduced – cost
State Health Insurance Assistance Program
State Health Insurance Assistance Program (SHIP) provides counseling services to Medicare beneficiaries. They help assist patients in making educated, informed decisions on their healthcare
State Programs for Children with Special Needs
States offer individual programs which provide medical assistance for children with special needs. These may offer assistance in covering medical expenses, help with finding a diagnosis, and other services depending on the state.
  • American Chronic Pain Association (ACPA)

    The ACPA was founded in 1980 to provide resources for people coping with chronic pain.

  • Caregiver Action Network

    The Caregiver Action Network (CAN) is a family caregiver organization working to improve the quality of life for those who care for loved ones with chronic conditions, disabilities, disease or the frailties of old age.

  • Children’s Defense Fund

    The Children’s Defense Fund is a non-profit organization devoted to children’s issues, including the Children’s Health Insurance Program.

  • Families USA

    Families USA is a non-profit organization dedicated to the achievement of high-quality, affordable health and long- term care for all Americans. The website contains state and national resources.

  • Family Voices

    Family Voices is a national organization that provides information and education concerning the healthcare of children with special health needs.

  • Health Insurance Resource Center

    A resource for families, individuals and the self-employed, the Health Insurance Resource Center provides the tools to become a better-informed health insurance consumer.

  • Insure Kids Now

    This site provides links to state child and adolescent health insurance programs.

  • Invisible Disabilities Association

    The Invisible Disabilities Association (IDA) helps those living with various conditions, as well as their loved ones, through their website, articles, literature, projects and seminars.

  • National Committee for Quality Assurance

    The National Committee for Quality Assurance (NCQA) is a private, not-for-profit organization dedicated to assessing and reporting on the quality of managed care plans.

  • National Disabilities Rights Network

    The National Disabilities Rights Network (NDRN) is a non-profit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.

  • National Family Caregivers Association

    The National Family Caregivers Association (NCFA) is a grass roots organization created to educate, support, empower and speak up for millions of Americans who care for chronically ill, aged or disabled loved ones.

  • National Organization for Rare Disorders

    The National Organization for Rare Disorders (NORD) is a non-profit organization which provides information, programs and services for thousands of rare medical conditions.

  • National Patient Travel Center

    The National Patient Travel Center is a non-profit organization that provides a variety of services to individuals and families seeking ways to travel long-distances for specialized medical evaluation, diagnosis and treatment.

  • Patient Advocate Foundation

    The Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.

  • Patient Notification System

    The Patient Notification System is a program developed by the Plasma Protein Therapeutics Association (PPTA) to notify patients who receive plasma products, such as intravenous immunoglobulin (IVIG), about product recalls.

  • SKIP: Sick Kids Need Involved People

    This is an advocacy group which helps families in the state of New York receive financial aid, nursing services and government medical services that they may be entitled to for their chronically ill child.

  • HEATH Resource Center

    The HEATH Resource Center is the national clearinghouse on postsecondary education for individuals with disabilities. It provides information about educational support services, policies, procedures, adaptations and opportunities at American campuses, vocational-technical schools and other postsecondary training sites.

  • Centers for Disease Control and Prevention

  • Center for Biologics Evaluation and Research, FDA

    A division of the Food and Drug Administration (FDA) whose mission is to protect and enhance public health through regulation of biological products to ensure their safety, effectiveness and timely delivery to patients. This agency provides information on biological products, such as blood and plasma, including new product approvals, adverse events, product recalls and withdrawals.

  • Centers for Medicare and Medicaid Services

    The Centers for Medicare and Medicaid Services (CMS) provides information for individuals receiving services from Medicare, Medicaid or SCHIP.

  • National Institutes of Health

    U.S. Department of Health And Human Services: National Institutes of Health

    The National Institutes of Health (NIH) provides information on advances in health, science and medical issues. The following are divisions of NIH:

    • National Cancer Institute

      National Cancer Institute (NCI) provides the following information about cancer: topics, trials, statistics and research.

    • National Heart, Lung and Blood Institute

      The National Heart, Lung and Blood Institute (NHLBI) provides leadership for a national program in diseases of the heart, blood vessels, lung, and blood; blood resources; and sleep disorders.

    • National Human Genome Research Institute

      The National Human Genome Research Institute (NHGRI) applies genome technologies to the study of specific diseases and the genetic components of complex disorders.

    • National Institute of Allergy and Infectious Diseases

      TThe National Institute of Allergy and Infectious Diseases (NIAID) is provides information on allergy and infectious diseases, as well as primary immunodeficiencies.

    • National Institute of Child Health and Human Development

      The National Institute of Child Health and Human Development (NICHD) provides general information on children’s health issues, including an in-depth booklet on primary immunodeficiencies.

    • National Institute of Neurological Disorders and Stroke

      The mission of NINDS is to reduce the burden of neurological disease – a burden borne by every age group, by every segment of society, by people all over the world.

    • NIH Clinical Trials

      The NIH Clinical Trials site contains current information on clinical trials being conducted, some of which may be pertinent to primary immunodeficiencies.

    • NIH Health Information

      This is an A-Z index of NIH health resources, clinical trials, MedlinePlus and health hotlines.

    • NIH Office of Rare Diseases

      The NIH Office of Rare Diseases (ORD) coordinates research on rare diseases and supports research to respond to the needs of patients who have any one of the more than 6,000 rare diseases known today.

    • NIH Research Training and Scientific References

      This site contains information about intramural research, Human Embryonic Stem Cell Registry, scientific interest groups, library catalogs, journals, training, labs, scientific computing and more.

    • National Library of Medicine

      The National Library of Medicine (NLM) is the world’s largest medical library. The library collects materials and provides information and research services in all areas of biomedicine and healthcare.

  • National Office of Public Health Genomics

    This site provides updated information on how human genomic discoveries can be used to improve health and prevent disease. It also provides links to Centers for Disease Control and Prevention (CDC) activities in public health genomics.

  • U.S. Department of Education

    This site contains information for parents about education for children of all ages and abilities.

  • U.S. Department of Health and Human Services

    The U.S. Department of Health and Human Services (HHS) is the U.S. government’s principal agency for protecting the health of all Americans and providing essential human services. The site contains information on the department’s numerous federal programs.

  • U.S. Department of Labor: Continuation of Health Coverage (COBRA)

    COBRA gives workers and their families who lose their health benefits the right to choose to continue group health benefits provided by their group health plan for limited periods of time under certain circumstances such as voluntary or involuntary job loss, reduction in the hours worked, transition between jobs, death, divorce and other life events..

  • U.S. Department of Labor, Employment Standards Administration, Wage and Hour Division

    Administers and enforces the Family and Medical Leave Act (FMLA) for all private, state and local government employees, and some federal employees. FMLA entitles eligible employees to take up to 12 weeks of unpaid, job- protected leave in a 12-month period for specified family and medical reasons.

  • U.S. Equal Employment Opportunity Commission

    Individuals can find information about the Equal Employment Opportunity Commission (EEOC), its current activities and legislative documents such as The Americans with Disabilities Act (ADA), which protects civil rights in the areas of employment, public accommodation, transportation and telecommunications for people with disabilities, including developmental disabilities.

  • U.S. Social Security Administration

    This website contains complete information about Social Security.

For patients needing assistance for Immune Globulin Therapy, here are companies that assist patients based on brand and in many cases based on FDA on-label guidelines for assistance.

  • Ocrevus™

    Company: Genentech
    Usage in MS: Disease-Modifying Agent
    Genentech Access Solutions can be reached at 1-844-OCREVUS (1-844-627-3887) or 1-866-4ACCESS (866-422-2377)

  • Plegridy®

    Company: Biogen
    Usage in MS: Disease-Modifying Agent
    Above MS can be reached at 1-800-456-2255

  • Rebif®

    Company:EMD Serono, Inc. and Pfizer, Inc.
    Usage in MS: Disease-Modifying Agent
    MS LifeLines can be reached at 1-877-447-3243

  • Tecfidera® (U.S.) (teck-fi-DARE-ah)

    Usage in MS: Disease-Modifying Agent
    Above MS can be reached at 1-800-456-2255

  • Tysabri® (formerly called Antegren)

    Usage in MS: Disease-Modifying Agent
    Above MS can be reached at 1-800-456-2255

  • Patient Services Incorporated (PSI)

    The nonprofit PSI specializes in health insurance premium, pharmacy co- payment and co-payment waiver assistance for people with chronic illnesses.

  • Partnership for Prescription Assistance (PPA)

    PPA brings together biopharmaceutical companies, providers, patient advocacy organizations and community groups to help qualifying patients who are uninsured or underinsured get free or nearly free medicines through the program that’s right for them.

  • NeedyMeds

    A non-profit organization that maintains an extensive database of information about patient assistance programs, state assistance, drug discount programs, and free or low-cost medical care. You can search their database for free on their web site. The site also has information on thousands of programs to help consumers through the application process.

  • The Assistance Fund

    The Assistance Fund is an independent charitable patient assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses.

  • Patient Advocate Foundation

    Helps patients with access to care, maintenance of employment and preservation of their finances. or

  • Good Days

    At Good Days our mission is to ensure no one has to choose between getting the medication they need and affording the necessities of everyday living. Good Days offers financial assistance, premium assistance and travel assistance.

  • Healthwell Foundation

    When health insurance is not enough, HealthWell fills the gap. We help patients living with chronic and life-altering illnesses pay their share of prescription drug copayments, deductibles, and health insurance premiums.

  • Medmonk

    Medmonk helps pharmacists obtain funding for patients who cannot afford their out-of-pocket pharmaceutical expenses.

  • The Medicine Program

    The Medicine Program is a patient advocacy organization helping individuals and families across America get access to up to 2,500 prescription medications available today for free or nearly free of charge through Patient Assistance Programs.

  • RxAssist

    Offers a comprehensive online database of drug company programs that provide free or affordable drugs and co-pay assistance.

  • Center for Benefits

    Provided by the National Council on Aging, this shares information about assistance programs for low-income seniors and young people with disabilities.

  • Patient Access Network Foundation (PAN)

    PAN Foundation helps patients suffering from certain cancers, chronic illness and rare diseases through more than 50 disease specific financial assistance programs. Assistance includes covering out-of-pocket and medical expenses.

  • RxHope

    A web-based resource where you can search by medication to locate assistance programs. They also offer help with the application process.

  • National Association of Counties (NACo)

    Prescription Card Discount Program – NACo provides a free prescription discount card exclusively for NACo member counties to offer to their residents. The card will give discounts on prescriptions for residents who are uninsured, seniors or pet owners. A list of participating counties is listed at

  • RxOutreach

    A non-profit charity that provides medicine for people who cannot afford it. They offer more than 500 medications through their mail order pharmacy with support from generous donors.

  • National Council on Aging (Benefits Check Up)

    This nonprofit service and advocacy organization offers adults over the age of 55 help in paying for prescription drugs, health care, utilities and other basic needs.

  • IVIG/SCIG Patient & Provider Support Group

    This site invites all U.S. patients, caregivers, and providers who seek information about immune globulin therapy (IVIG/SCIG) to join this closed group.

Patient Communities

Hashimoto’s Encephalopathy SREAT Alliance

Huntington’s Disease Society of America at

Movement Disorder Society

Platelet Disorder Support Association

GBS/CIDP Foundation International

Neuropathy Action Foundation

Multiple Sclerosis Association of America at

Myasthenia Gravis Foundation of America

Myasthenia Gravis Hope Foundation

The Myositis Association

Cure JM Foundation

Myositis Support & Understanding


International Pemphigus & Pemphigoid Foundation

Immune Deficiency Foundation

Jeffrey Modell Foundation

Talk to a CSI Pharmacy Expert